Friends are an important part of the caregiving process, either as the primary caregiver or as a support to family caregivers. At times it may be difficult for a friend to identify what role they should play and to what degree they should be involved.
As in all caregiving situations, the best way to find out what kind of support the person with Parkinson's needs is to ask them directly. If they are unable to answer the question effectively, ask the family members to let you know what role you could play. In addition to having conversations with the people most involved in the caregiving, here are some things to consider:
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Be direct and clear in your offer of help.
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Don't assume your willingness and availability are known to all.
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Your role will depend on the stage of Parkinson's and will change over time.
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Providing support to family members is equally important
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Don't overlook tasks that may seem secondary to personal support such as raking leaves, taking out the garbage, cutting the grass or getting groceries.
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Household tasks are important and your help could be greatly appreciated!
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Provide practical suggestions but don't feel badly if they are not acted upon.
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"Successful" helping does not always result in someone feeling better. Recognize that some things won't change, no matter how much help is provided.
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As with all caregiving roles, you can't help if you don't care for yourself. Respect your own boundaries and your own energy level.
