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About Parkinson Society BC

 

Every year, Parkinson Society British Columbia (PSBC) dedicates the month of April to raising awareness of the unique experiences of people with Parkinson's, and the needs of our community. Parkinson's Awareness Month is an opportunity to engage the public in expanding their understanding of Parkinson's, and the profound effects it has on the lives of over 13,000 British Columbians living with the disease.

April is officially recognized by the Province of British Columbia as Parkinson's Awareness Month. See the proclamation here.

This April, we want to spread the message that Parkinson's is more than a tremorThe disease can affect all aspects of one's life, and there is currently no known cure.

Our 2021 campaign highlights: 

  • Personal journeys shared by people with Parkinson's, their families, and carepartners.
  • The importance of living well with Parkinson's, through self-management, self-reliance, and self-advocacy.
  • Community ties and peer support bringing together the Parkinson's community across British Columbia. 

Olsens

While most people have heard of Parkinson's disease, the breadth of symptoms experienced, and ripple effect the disease has on friends, family, and the healthcare system, are lesser understood. With approximately 13,000 people affected by the condition, Parkinson's is the second most common neurological disorder after Alzheimer's - yet it receives considerably less attention.

In light of the COVID-19 pandemic, PSBC's Parkinson's Awareness Month campaign will be focused online. Throughout April, we will be posting to our social media channels every weekday, so be sure to follow us on Facebook, Twitter, and Instagram!


#MoreThanATremor

In recognition of Parkinson's Awareness Month, and World Parkinson’s Day on April 11, we are encouraging individuals affected by the disease to share their experiences through our #MoreThanATremor campaign.

Every journey with Parkinson's is unique. The disease can run in families, or come as a complete surprise. Often, many people with Parkinson's don't understand much about the disease until they themselves are diagnosed. This Awareness Month, we have invited members of our community to share their stories by submitting a letter written to their younger selves.

Click on the links below to read our letter submissions:

Letter submissions will be shared with the public on social media as part of our #MoreThanATremor campaign. These stories serve as an important reminder of the profound impact that Parkinson's can have on the lives of those living with the disease, or caring for someone who does. We hope that these letters will inspire hope in those who are newly diagnosed, and offer an opportunity for members of the public to learn more about the experience of life with PD.

Tweedles


How can I participate?

Whether you are a person with Parkinson's disease, carepartner, friend, or family member, we invite you tell your story, and help spread the word that Parkinson's is #MoreThanATremor! See below for information on how you can help make a difference this April.

Share your story

This Awareness Month, we invite you to share your journey by submitting a letter written to your younger self.

Think of when you were first diagnosed, and all of the questions, worries, and emotions you had at the time. What advice would you give your younger self? What do you know now that you wish you had known then? Use the form below to submit your responses, or email your letter to Jovana Vranic, Marketing & Communications Senior Coordinator, at jvranic@parkinson.bc.ca.

These letters may be shared throughout the month of April in our awareness campagin on social media, on our website, and in newsletters to our community. If you would like your story to remain anonymous if published, please indicate this in the form below. Please be sure to include your contact information in your submission if you would like to be notified if your story is published. Your contact information will remain confidential, and will not be shared online.

We welcome letters from anyone affected by Parkinson's, whether you were recently diagnosed, or living with the disease for decades. Carepartners and family members are also encouraged to share their stories. Thank you for your interest!

Submit Your Letter

Post on social media

Social media is a powerful way to communicate. This year, we are encouraging you to share your Parkinson's disease (PD) story using the hashtag #MoreThanATremor on Facebook, Twitter and Instagram. 

Sharable Images

Click on the thumbnails below to view and download our shareable social media images! Please feel free to share these graphics on your social media channels, and be sure to tag us and use the hashtag #MoreThanATremor!

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Awareness 2021 Social Media Shareable Awareness 2021 Social Media Shareable Awareness 2021 Social Media Shareable Awareness 2021 Social Media Shareable Awareness 2021 Social Media Shareable

Facebook

Be sure to like Parkinson Society British Columbia's page on Facebook. Share your PD story on our wall or on your personal profile using the #MoreThanATremor hashtag. Select posts might be re-shared on the PSBC Facebook page*.  

Sample Facebook Posts:

  1. Approximately 13,000 British Columbians have been diagnosed with Parkinson's disease (PD). While most people have heard of PD, the breadth of symptoms experienced and the ripple effect the condition has on family, friends and the healthcare system is lesser known. This April, I am supporting the Parkinson's community in BC by participating in #MoreThanATremor.

  2. April is Parkinson's Awareness Month, and I'm taking part in the #MoreThanATremor campaign to help raise awareness about Parkinson's disease, the second most common neurodenerative disorder after Alzheimer's.

Twitter

Tweet your thoughts on PD or photos, and use the #MoreThanATremor hashtag. As long as your tweets are public, others will be able to find you via the hashtag and engage*. 

Find us on Twitter

Sample Tweets:

  1. While you might have heard of Parkinson's, did you know that symptoms vary significantly from person to person? #MoreThanATremor

  2. April is #ParkinsonsAwarenessMonth. Although Parkinson's is slightly more prevalent in men than women, it impacts people regardless of age and ethnicity. #MoreThanATremor

  3. Parkinsons disease impacts 13,000 British Columbians, as well as friends, family members, and the healthcare system. #MoreThanATremor

Instagram

Tell your #MoreThanATremor story visually on this photo based platform!*

Find us on Instagram.

*Parkinson Society British Columbia understands that everyone has a right to privacy on social media. Most social media platforms, including Facebook, Twitter, and Instagram, offer varying levels of privacy. Please don't feel pressure to change your settings - there are other ways to support this campaign! However, please be aware that hashtags can only be viewed by those who can see your accounts.  

Approach your local news outlet

Since April is Parkinson's Awareness Month, news coverage about the disease and the people affected is considered topical. In the past, many people with Parkinson's have been successful in helping to earn media coverage in their communities. This year, PSBC invites you to approach your own local media! 

When approaching the media, please feel free to share our press release, which offers details on Parkinson's Awareness Month and Parkinson Society BC. View and download the press release here. 

In past years, residents have also provided interviews, written letters to the editor or offered their own stories which have been shared with various types of media. Here are some examples:

COVID-19 considerations

In light of the COVID-19 pandemic, this year's Parkinson's Awareness Month campaign will be focused online. For the health and safety of our community across the province, we have made the decision not to share any printed materials during this year's campaign. This includes mailings, posters, and awareness kits for support groups.

Parkinson Society BC strongly advises its members to avoid any in-person awareness activities this year, in order to minimize the risk of exposure to COVID-19.

In previous years, our supporters have generously volunteered their time participating in outreach activities in their communities, like distributing posters, hosting booths in public spaces, and organizing local events. We are extremely grateful to those who have dedicated their time to raising awareness and increasing visibility for the Parkinson's community, and we hope to continue to work together on local outreach opportunities in future years.


Community Partners

Organizations across the province are showing their support for Parkinson's Awareness Month by sharing stories, making public services announcements, and lighting up their landmarks this April! Parkinson Society British Columbia is grateful for the support of all of our community partners this year. Learn more about our partners and how they're supporting us below.


Radio

Rogers Radio has generously donated over $15,000 worth of advertising space in support of Parkinson Society BC's April Awareness efforts this year! Rogers stations across the province will be airing our public service announcement on April 5-11. Participating stations include:

983 Star

Star 98.3 | Chilliwack
Rogers Radio

985 Ocean

Ocean 98.5 | Victoria
Rogers Radio

Jack 1031

Jack 103.1 | Victoria
Rogers Radio

Jack 969

Jack 96.9 | Vancouver
Rogers Radio

KiSS 104.9

Kiss 104.9 | Vancouver
Rogers Radio

Kiss 925

Kiss 92.5 | Abbotsford
Rogers Radio

Kiss 1075

Kiss 107.5 | Chilliwack
Rogers Radio

Country 1071

Country 107.1 | Abbotsford
Rogers Radio

News 1130

News 1130 | Vancouver
Rogers Radio

Sn 650

Sportsnet 650 | Vancouver
Rogers Radio

Mountain Fm

Mountain FM | Whistler
Rogers Radio

 

The following stations have kindly included Parkinson's Awareness Month in their programming and community announcements:


Landmark lighting

To signal their support for the Parkinson's community, buildings and landmarks across the province are lighting up in Parkinson Society BC's colours, teal and magenta this April 11, on World Parkinson's Day! We extend our thanks to the participating locations below:


Show your support!

We invite local businesses and organizations to show their support for our campaign and lend their platform to become a community partner this April Awareness Month! Community partners will be recognized in our newsletters, on our website, and on social media. For more information on how your organization can get involved, read on below.

Landmark lighting

In recognition of World Parkinson’s Day this April 11, Parkinson Society British Columbia is partnering with landmarks and facilities across the province to light up for Parkinson’s awareness. We invite all interested organizations and businesses to show their support for over 13,000 British Columbians living with Parkinson’s, and help spread the message that no one is alone in their journey with this disease.

Please consider lighting up your facility or landmark in teal and magenta this April 11 to signify the colours of our community as represented by Parkinson Society BC.

Sponsorship & advertising

Give the gift of support by sponsoring or donating an advertising opportunity on World Parkinson's Day, April 11. Parkinson Society British Columbia relies on the generosity of our donors to fund our public awareness and advocacy efforts. By donating an advertising space, you can help us raise support and awareness for the Parkinson's community.

Social media

Help us spread the word by sharing our posts on FacebookTwitter, and Instagram. Throughout the month of April, we will be releasing stories, photos, and videos as part of our public awareness campaign. Show your support by using our hashtag, #MoreThanATremor! Stay tuned to see our posts.


If you have questions or comments about #MoreThanATremor or any of PSBC's awareness activities, please contact:

Jovana Vranic
Marketing & Communications Senior Coordinator
jvranic@parkinson.bc.ca | 1-800-668-3330
Alicia Wrobel
Senior Manager, 
Resource Development & Communications
awrobel@parkinson.bc.ca | 1-800-668-3330