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Parkinson Society British Columbia was established with a mission to empower people with Parkinson's in British Columbia through providing resources and services to enable self-management, self-reliance, and self-advocacy. In 2019, we celebrate 50 years of service to our community.

Parkinson Society BC invites you to join us in celebrating this milestone. This year, we hope to extend our reach further, and strengthen our impact greater than ever before — within the Parkinson's community and beyond. 

How will the 50th Anniversary be promoted?

Education & Resources

Parkinson Society BC is proud to provide a rich collection of free and easily-accessible online resources for people with Parkinson's across the province. We also host many workshops, conferences, and community talks on wide ranging topics, featuring guest speakers such as doctors, researchers, allied healthcare professionals, motivational speakers, and more.

Here are some of the ways we are updating and expanding our educational resources this year:

Events

  • Our provincial conference, Moving Forward, Together, is back this year with a new stream for healthcare professionals. Speaker and session information is coming soon - stay tuned!
  • We are working with Parkinson's experts to offer more educational experiences for our community, like laboratory tours at the Centre for Applied Neurogenetics at UBC, and weekly online exercise classes led by NeuroFit BC!

Newsletters

  • This year's issues of the quarterly Viewpoints newsletter will be 4 pages longer than ususal. In them, we are bringing you more information on our programs and services, educational articles, and interviews with leading Parkinson's researchers and healthcare professionals.
  • GroupLink and Viewpoints both have a new look! Our newsletters have been updated to feature a more modern, and easy-to-read design.

Webinars

  • We are bringing you more webinars on timely topics like balance and falls, genetic research, medications, self-managment, and much more!
  • Due to the growing popularity of our online webinars, we are now offering registration waitlists to accommodate as many participants as we can.

Support Groups

  • We are working with communities across the province to organize more support groups for people with Parkinson's and their carepartners. 
  • Two new support groups have been launched this year, in Surrey and the North Shore! 

Inspirational Stories

In 2019, we are celebrating you! Throughout the year, we will be sharing the stories of those touched by Parkinson's to increase public awareness, and honour the strength of our community. Look out for these stories:

  • Volunteer profiles in our monthly Good News e-newsletter [learn more]
  • Story submissions from our community on our website [learn more]
  • Interviews with people with Parkinson's, carepartners, and other community members in our 50th Anniversary video series [learn more]

Public Awareness

During our 50th year in service, we want to get closer to our goal of supporting each and every individual touched by Parkinson's in British Columbia. That is why this year, we will be taking every opportunity to share our mission and vision with the public. Here are some of the ways we are promoting public awareness:

  • Every two weeks on our social media platforms, we are sharing a photo or clipping from our newsletter archives for #ThrowbackThursday. These public posts are meant to spread awareness of our Society, our programs and services, and the kinds of resources and information that we offer.
  • On social media, we are encouraging our community to share their stories and photos from PSBC events and fundraisers they have attended over the years.
  • On April 11, World Parkinson Day, we hosted a luncheon with MLAs and Ministers from across the province to thank them for their support of our campaigns to increase access to Deep Brain Stimulation and DUODOPA therapy. We took this opportunity to share our history and vision for the future, and encourage their support for further advocacy efforts by the Society.
How can I get involved in the 50th Anniversary campaign?

Social Media

We believe that every person affected by Parkinson's disease deserves to know that they are not alone. Help us spread the message, and let them know that we are here to help. Tell us about how Parkinson Society British Columbia has helped you, using the hashtag #PSBC50!

Here are some of the things you can share to help spread our message:

  • Photos from Parkinson Society BC events you have attended over the years.
  • Stories about how the Society's staff, volunteers, or support groups have helped you.
  • Testimonials from our educational events.
  • Promotion of any of our fundraisers.
  • Links to any of our online materials that you have found helpful.

Anything you post about our Society, we encourage you to include the hashtag #PSBC50, and don't forget to tag us!

Submit a Story

We invite our community members to submit their story for a chance to be featured in Good News, Viewpoints, on our website, or on social media! We encourage you to share any of the following:

  • Your journey with Parkinson's disease
  • Testimonials about our resources, services, or events
  • Anecdotes from your life with Parkinson's
  • Stories about your Parkinson's support group, exercise group, etc.

Not sure where to start? You can tell us about your Parkinson's journey by answering the interview questions below, and submitting your response to Jovana Vranic at jvranic@parkinson.bc.ca.

People with Parkinson's:

  • Tell us about your life before diagnosis (work, hobbies, family, etc.).
  • When were you diagnosed, and how?
  • How did you adapt to your diagnosis?
  • What resources have been helpful to you?
  • How long have you been involved with Parkinson Society BC?
  • Have you attended our events or fundraisers? What has been your experience?
  • Do you attend a support group? If so, what is your experience with your group?
  • What helps you manage your symptoms (self-care strategies, exercise, etc.)?
  • What do you wish more people knew about Parkinson's disease?
  • What is your message to newly diagnosed people with Parkinson's?

Carepartners/Family/Friends:

  • Who in your life has Parkinson's disease? Tell us about their journey.
  • How did you adapt to their diagnosis?
  • What changes have you noticed in your loved one with Parkinson's?
  • How does your loved one's diagnosis affect you?
  • What resources have been helpful to you?
  • Have you attended our events or fundraisers? What has been your experience?
  • How do you support your loved one with Parkinson's?
  • What do you wish more people knew about Parkinson's disease?
  • What is your message to those who have a loved one who is newly diagnosed with Parkinson's?

50th Anniversary Video Series

This year, we are launching our very first video series, highlighting the Society's history and achievements, and the community that has helped us along this journey. This series is being produced with awareness in mind. We hope that these stories will resonate not only within our community, but inspire the public to support our mission to ensure all British Columbians touched by Parkinson's know that they are not alone on their journey.

Click to watch our videos below, and subscribe to our YouTube channel to be notified of our new releases!

50th Anniversary Videos

Support Groups

These are the stories of people with Parkinson's and their carepartners who have benefitted from attending their local support group.

Maple Ridge Support Group [watch here]

Thank you to our participants:

  • Diane & Brian Bond
  • Arnold & Wilhelmina Maki
  • Chris & Harold Olsen

Vancouver Working Professionals [watch here]

Thank you to our participants:

  • Roberta Beiser
  • Allan Knight
  • Lee Lourdeaux

 


If you have questions or comments about our 50th Anniversary campaign, or any of PSBC's awareness activities, please contact:

Jovana Vranic
Marketing & Communications Coordinator
1-800-668-3330
jvranic@parkinson.bc.ca
Alicia Wrobel
Senior Manager, 
Resource Development & Communications
1-800-668-3330
awrobel@parkinson.bc.ca