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What I Wish People Knew - Banner

In Spring 2018, we asked attendees at Parkinson Society BC affiliated events to fill out 'What I wish people knew about Parkinson's' star cards. Listed below is a sample of the 100+ responses we received from individuals impacted by Parkinson's disease in BC: 

  • We are still the same people. [view star card]
  • Not everyone shakes. Please be patient with people with mobility issues. [view star card]
  • Regular people, irregular condition. [view star card]
  • How tiring it is to be a caregiver. [view star card]
  • Routine is my best friend. [view star card]
  • It is not life threatening. [view star card]
  • PD is so much more than 'the shakes,' 'a tremor' or a 'movement disorder.' PD affects every aspect of my life, with motor and non-motor symptoms. [view star card]
  • It is an aggressive neurological disease with NO cure. I wish there was a cure. It can strike anyone. The disease does NOT define the person, it changes the person & we must work hard to minimize these changes through funding, education, exercise, medication, nutrition & an iron strong determination from family, friends and caregivers. [view star card]
  • You are not alone. [view star card]
  • Everyone is affected in a different way. [view star card]
  • It affects the whole family as the person with Parkinson's changes a lot. [view star card]
  • How many people are afflicted annually. [view star card]
  • Medicine must be taken on time - every time. [view star card]
  • You can live with it! [view star card]
  • Support groups are very helpful for both the person with Parkinson's and their caregiver. [view star card]
  • It's not just about shaking! There are more symptoms than just what you see! Let me tell you about it! [view star card]
  • That I am not drunk. [view star card]
  • No two people with Parkinson's show same symptoms! [view star card]
  • Depression is a part of it. Hard to get going some days. [view star card]
  • Everything we do takes so much energy and effort. We may appear like we are capable but not always. [view star card]
  • Hard to diagnose. [view star card]
  • The fatigue is often invisible. Patience helps. [view star card]
  • Ask if you can help, don't just take over. [view star card]
  • It may seem like your life is over, but it is just a new chapter with many benefits and enjoyment. Do not give up! [view star card]
  • We still need our friends! [view star card]
  • Weight loss from constant movement increases frailty! [view star card]
  • Not all people with Parkinson's are affected the same way and progress at the same rate. [view star card]
  • The unpredicatble strength of a lion, weak as a lamb, often within the space of an hour. [view star card]