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Agenda

8:00am - Registration Opens 


9:00am - Opening Remarks - Jean Blake, CEO of Parkinson Society BC


9:10am - Motivational Speaker - Leslie Davidson

Biography

Biography
Leslie DavidsonLeslie Davidson was diagnosed with Parkinson's disease in 2011.  Shortly thereafter her husband was diagnosed with a younger onset dementia, now confirmed as Lewy-Body Dementia. In an effort to make sense of the big changes in their lives, Leslie began to write.  Her essay, Adaptation, won the CBC Creative Non-fiction prize for 2016.  The announcement was made while Leslie was attending the World Parkinson Congress in Portland. Her first picture book for children, In The Red Canoe, was released the same week. She lives in Revelstoke, BC where she is an advocate for Parkinson’s and dementia research and support, a constant presence in the long-term care facility where her husband lives, and Grandma to 4 preschool-aged children. Dancing in her kitchen, yoga, meditation, walking and laughter help her manage Parkinson's; a large and beautiful village of extended family and friends provides the motivation. 


9:30am - Plenary 1: Genetics & Environment - Beate Ritz

Biography & Presentation Summary

Presentation Summary
Dr. Ritz will be discussing the relationship between genetics, the environment and Parkinson’s disease. In the post-genomics era, much of Parkinson’s disease (PD) etiology still cannot be explained by genetic or environmental factors. Some of the unexplained PD etiology has been referred to as 'missing genetic heritability' and attributed to undiscovered rare genetic variants conferring large risks, though this explanation has not been supported by data. Dr. Ritz argues that gene-environment (GxE) interactions may have a large contribution that remains underexplored. Her studies established specificity for pesticides’ neurodegenerative actions in humans contributing biologic plausibility to epidemiologic findings and are poised to help us identify those genetically susceptible to PD if exposed to neurotoxic agents.


Biography
Beate Ritz WebDr. Beate Ritz, MD, Ph.D. Dr. Ritz is a Professor of Epidemiology and Environmental Health Sciences at the UCLA Fielding School of Public Health and of Neurology at the UCLA Geffen School of Medicine. 


10:30am - Volunteer Appreciation Awards


10:45am - Break


11:00am - Plenary 2: Apathy and Non-Motor Symptoms - Dr. Benzi Kluger 

Biography & Presentation Summary

Presentation Summary
Dr. Kluger will be presenting on apathy and non-motor symptoms of Parkinson’s disease (PD). PD is classified as a movement disorder but in recent years the non-motor symptoms have been acknowledged as components of the disease. At least 50% of people with PD experience depression and/or anxiety, and apathy occurs in as many as 40% of people with PD yet it remains one of the more misunderstood non-motor symptoms. Individuals with PD can also experience difficulties with sleep, fatigue and pain, which will be covered by Dr. Kluger during his plenary session.


Biography
Benzi KlugerDr. Benzi Kluger, MD, MS is an Associate Professor of Neurology and Psychiatry and Chief and Founder of the Palliative Care Section at the University of Colorado.


12:00pm - Prize Draw


12:05pm - Lunch | Exhibitor Hall 


12:30pm - Light Movement Break


1:00pm - Breakout Session 1 – with last 15 minutes for questions

1. Young Onset Parkinson's disease, Elaine Book & members of the Parkinson's community

Presentation Summary

Led by Elaine Book, MSW, a panel will discuss the experiences and insights of those living with Young Onset Parkinson's disease (YOPD) and will address how to stay strong on the PD journey.


Biography
Elaine BookMs. Book has worked in the field of Social Work for over 25 years in a variety of community and hospital settings with an interest in the geriatric population. She has worked with individuals, families and as a leader of support groups. She is the Center Coordinator and Clinic Social Worker for the NPF Center of Excellence, the Pacific Parkinson’s Research Centre, at the University of British Columbia in Vancouver, Canada.  She has become a leader in the PD community, serving as a speaker at support groups, a presenter at neurology meetings, a faculty member of the Allied Team Training Program and a mentor with the National Parkinson Foundation. Ms. Book also coordinates a blog designed for neurological social workers and has a special interest in raising awareness and developing resources for PWP and their children/teens. Ms. Book earned her B.S.W. from the University of Manitoba and her M.S.W. from the University of British Columbia, with her thesis focusing on caregiver stress. She has continued to expand her training throughout her career, for example in cognitive behavioral therapy, advance care planning and social work instruction.

2. Advanced Symptoms of Parkinson's disease, Dr. Martin McKeown

Join Dr. Martin McKeown, MD, Director of Pacific Parkinson's Research Centre, as he discusses how Parkinson's advances and its effects on multiple systems in the body. This talk will help you recognize the symptoms of advanced Parkinson's and understand how you and your loved one can manage them to lead a fuller life today. Dr. McKeown will also provide up-to-date information about Duodopa, a newly approved drug therapy in BC, and Deep Brain Stimulation.

3. Pain and Parkinson's disease, Dr. Daryl Wile

Presentation Summary
Do you experience pain as part of your Parkinson's disease (PD)? Are you looking for ways to better manage it? Join Dr. Daryl Wile, MD, Movement Disorder Specialist in Kelowna, as he delves into the intricacies of pain in PD, and learn how you can manage symptoms of pain.


Biography
Daryl WileDr. Daryl Wile completed a Bachelor of Science in Psychology at the University of British Columbia, a Master of Science in Behavioral Neuroscience at McGill University, and Doctor of Medicine followed by residency training in Neurology at the University of Calgary, with certification in Neurology by the Royal College of Physicians and Surgeons of Canada. During residency he conducted and published research on the use of technology for diagnosis of tremor, on the treatment of Tourette syndrome, and information from a large neurology clinic database. He completed a Clinical Movement Disorders Fellowship supported by the Parkinson's Society of Canada at the Pacific Parkinson's Research Centre in Vancouver under the supervision of Dr. A. Jon Stoessl, with a focus on genetic and brain imaging markers of clinical differences in Parkinson's disease. Dr. Wile continues to work at building the movement disorders program in Kelowna to address the needs of the Parkinson’s community and to improve quality of care and resources.

4. Sex and Parkinson's disease, Laurel Paterson

Presentation Summary
People with Parkinson's disease and their partners may experience challenges related to sexuality and intimacy that can affect quality of life and intimate relationships. Yet these challenges are rarely discussed among people with Parkinson's disease and their doctors. Join Dr. Laurel Paterson, PhD as she guides us through the Parkinson's symptoms conflicting with sex and intimacy, and how you can regain intimate relationships once more.


Biography
Laurel PatersonLaurel was born and raised in Vancouver and completed a BA in Psychology at UBC, followed by a PhD in Clinical Psychology at McGill University in Montreal, Quebec. During her graduate studies, she worked with Dr. Irv Binik, a sex researcher and expert in female genito-pelvic pain syndrome/provoked vestibulodynia (PVD). Her dissertation studies examined the factors that contribute to sexual pleasure (one of their results was rather humourously covered by Nerve.com).

After returning to Vancouver, Laurel completed a postdoctoral fellowship in the UBC Department of Obstetrics and Gynaecology, where she worked with Dr. Lori Brotto, a sex researcher and expert in female Sexual Interest/Arousal Disorder (SIAD) and the integration of mindfulness and sex therapy, at the UBC Sexual Health Laboratory. Along with colleagues from the BC Centre for Sexual Medicine and VGH, they developed and studied a mindfulness-based group therapy program for women’s low sexual desire, which they found to be highly effective and well-liked by participants (see the recent publication here). Laurel is also a co-investigator on the follow-up study (“DESIRE”), which compares two types of therapy for SIAD, and continues to facilitate groups.


2:00pm - Break 


2:15pm - Breakout Session 2 – with last 15 minutes for questions

1. Carepartners, Elaine Book & members of the Parkinson's community

Presentation Summary
Parkinson's disease doesn't just affect the individual with the diagnosis; it impacts those supportive people surrounding that individual. This panel discussion, led by Elaine Book, MSW, will address the stresses experienced by carepartners of those with Parkinson's disease, and how to mitigate such stresses and live for today.


Biography
Elaine BookMs. Book has worked in the field of Social Work for over 25 years in a variety of community and hospital settings with an interest in the geriatric population. She has worked with individuals, families and as a leader of support groups. She is the Center Coordinator and Clinic Social Worker for the NPF Center of Excellence, the Pacific Parkinson’s Research Centre, at the University of British Columbia in Vancouver, Canada.  She has become a leader in the PD community, serving as a speaker at support groups, a presenter at neurology meetings, a faculty member of the Allied Team Training Program and a mentor with the National Parkinson Foundation. Ms. Book also coordinates a blog designed for neurological social workers and has a special interest in raising awareness and developing resources for PWP and their children/teens. Ms. Book earned her B.S.W. from the University of Manitoba and her M.S.W. from the University of British Columbia, with her thesis focusing on caregiver stress. She has continued to expand her training throughout her career, for example in cognitive behavioral therapy, advance care planning and social work instruction.

2. Complementary Care, Dr. Benzi Kluger

Presentation Summary
With medical marijuana approaching legalization in Canada and 25 U.S. states having legalized it, it is obvious that there is strong interest in cannabis' therapeutic properties. Researchers are testing marijuana as a treatment for many illnesses and diseases, including neurological conditions, with Parkinson's disease (PD) high on the list. Join Dr. Benzi Kluger, MD, MS, from the University of Colorado, as he addresses the current cannabis research and its results.


Biography
Benzi KlugerDr. Benzi Kluger, MD, MS is an Associate Professor of Neurology and Psychiatry and Chief and Founder of the Palliative Care Section at the University of Colorado.

3. Autonomic Dysfunction, Christopher Mathias

Presentation Summary
Another area of scientific interest in Parkinson's disease is autonomic dysfunction – that is, problems with bodily functions over which we have no conscious control, such as the beating of the heart, sweating or bowel function. Join Dr. Christopher Mathias, MBBS, LRCP&S, DPhil DSc FRACP, FMedSci, from the University of London, as he addresses autonomic dysfunction in Parkinson's and management strategies.


Biography
Christopher MathiasProfessor Christopher Mathias was Professor of Neurovascular Medicine in the University of London, with an appointment held jointly between Imperial College London and the Institute of Neurology, University College London (1991-2013). He has been Emeritus Professor at University College London since 2014. He has been an honorary Consultant Physician at St Mary's Hospital since 1982 and at the National Hospital for Neurology and Neurosurgery, Queen Square, since 1985. He also consults at the Hospital of St John and St Elizabeth in St Johns Wood, London (since 2012).

4. Medication Management & Dyskinesia, Dr. Claire Hinnell

Presentation Summary
Join Dr. Claire Hinnell, MD, Director of the Movement Disorder Program at JOPCSC in Surrey, as she discusses a not-so-common conversation about Parkinson's medication management and dyskinesia, a difficulty or distortion in performing voluntary movement, which is often a side effect of long-term therapy with levodopa.


Biography
Claire HinnellDr. Claire Hinnell is a clinical neurologist and physician lead for the neurology group at Surrey Memorial Hospital. She directs the Movement Disorders Program at the Jim Pattison Outpatient Care and Surgery Centre in Surrey and is a Clinical Assistant Professor at the University of British Columbia. She received her M.D. from the University of British Columbia in 2006 and completed her neurology residency at the University of Calgary in 2012. She specialized in movement disorders, completing fellowships at King's College Hospital (London, UK) in 2010 and the University of British Columbia in 2013.


3:15pm - Conference Ends 

 

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