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VICTORY! The Ministry of Health announced on February 14, 2017 that they will be working with the Pacific Parkinson’s Research Centre to identify and prioritize patients for coverage of DUODOPA. Read the press release.

HOW CAN YOU HELP? 

Sign our online petition

Help spread the word about this petition!
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Share PSBC's DUODOPA video on your social networks

Share our DUODOPA® advocacy video via Facebook and Twitter to generate awareness of the issue!
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Write a letter to government officials

As a community, we need to express the importance of this therapy for people with advanced Parkinson's disease. You can help by writing a letter to your MLA, BC's Minister of Health and the Assistant Deputy Minister, Medical Beneficiary and Pharmaceutical Services. This can be done via email or by post.

  1. Find your MLA's contact information, visit: https://www.leg.bc.ca/learn-about-us/members

  2. Post or e-mail your letter to your MLA, BC’s Minister of Health, Dr. Terry Lake & Assistant Deputy Minister and Medical Beneficiary and Pharmaceutical Services, Barbara Walman:
     
    Hon. Dr. Terry Lake
    Minister of Health
    Room 337, Parliament Buildings 
    Victoria, BC V8V 1X4
    Email: Hlth.Minister@gov.bc.ca

    Barbara Walman 
    Assistant Deputy Minister
    Medical Beneficiary and Pharmaceutical Services
    PharmaCare
    PO Box 9655 Stn Prov Govt
    Victoria, BC  V8W 9P2
    Email: Barbara.Walman@gov.bc.ca

Need a sample letter? Download one here.
Please be sure to amend or remove the last paragraph in the sample letter before sending.


DUODOPA® is used to treat patients with advanced Parkinson's disease who have severe and disabling motor symptoms that cannot be well controlled with available combinations of medications. It is a levodopa and carbidopa drug combination delivered in the form of a gel through an intestinal pump.

The therapy enables people to live independently in their own homes for many more years. For a young person, it means greater employment options or the opportunity to go back to work. For an older person, life at home continues instead of disabling symptoms forcing an individual into long term care or hospitalization. Furthermore, it can provide relief to caregivers by reducing their responsibilities in the role, improving their own health and offering more flexible employment options. 

This drug has been approved by Health Canada and is funded in a number of other provinces, excluding British Columbia. While the cost of the drug is $60,000 per year, it is estimated there are very few patients in BC that will be good candidates for this therapy. It is the only hope that these few patients have of avoiding the progression of their symptoms. It is also an opportunity for the BC Government to minimize or avoid costs for home care, emergency services, hospitalization and/or long term care. 

Parkinson Society British Columbia aims to be an effective advocate for issues important to the Parkinson's community. We are currently in discussions with BC PharmaCare about ensuring that individuals who need access to DUODOPA® therapy are covered under the provincial PharmaCare plan.

To encourage others to show their support for this goal we are now sharing the experiences of individuals with Parkinson's disease who would benefit from affordable access to this therapy in a short video titled Advocating for Better Care: DUODOPA (WARNING: This video contains strong emotional material regarding patients' experience with Parkinson's disease, and content may be upsetting to some viewers). 

Learn more about DUODOPA® in PSBC's issue summary [download the issue summary].

Read more about DUODOPA® coverage in Canada [download summary].

View the research published in The Lancet Neurology that evaluated the efficacy of levodopa-carbidopa delivered as an intestinal gel [read study summary].


MEDIA COVERAGE ON DUODOPA:

  • February 15, 2017 - CFJC Today 
    Parkinson's patients in Kamloops applaud B.C. funding for duodopa
    [view story]
  • February 14, 2017 - Kelowna Now
    Health Ministry working to cover Parkinson's medication
    [view story]
  • February 14, 2017 - CBC News
    B.C. government to cover expensive Parkinson's treatment family has pleaded for
    [view story]
  • February 14, 2017 - The Province
    Hope man thrilled with government decision to cover expensive Parkinson's drug therapy 
    [view story]
  • February 14, 2017 - Global News
    Government will fund Parkinson's drug
    [view video]
  • February 14, 2017 - Vancouver Sun
    Hope man thrilled with government decision to cover expensive Parkinson's drug therapy
    [view story]
  • February 14, 2017 - CTV News
    B.C. to fund pricey Parkinson's drug treatment
    [view story]
  • February 14, 2017 - CTV News Vancouver Island
    'Best news in the whole world': B.C. announces coverage of Parkinson's drug
    [view video]
  • February 14, 2017 - The Now (Surrey); Rossland News; Agassiz Harrison Observer
    Costly Parkinson's treatment to be covered for 'small group' of British Columbians
    [view story]
  • February 14, 2017 - CKNW New Talk AM980; AM730; iNews880AM
    Expensive Parkinson's treatment now covered by PharmaCare
    [view story]
  • February 14, 2017 - GlobalNews.ca
    B.C. Health Ministry will cover Parkinson's medication Duodopa
    [view video]
  • February 14, 2017 - Government of British Columbia
    Health Ministry to cover Parkinson's medication
    [view press release]
  • February 10, 2017 - CTV News Vancouver Island
    Woman's emotional plea for Parkinson's drug to be brought up at BC Legislature
    [view video]
  • February 9, 2017 - CTV News Vancouver Island
    Families in other provinces say drug is a miracle
    [view video]
  • February 9, 2017 - CTV News Vancouver Island
    'Game-changer' Parkinson's drug not covered in B.C. helping other Canadians
    [view video]
  • February 6, 2017 - CTV News
    Offers pour in for Parkinson's patient
    [view video]
  • February 3, 2017 - CTV News
    'I don't want to die': B.C. woman living with Parkinson's wants therapy approved
    [view video]
  • January 31, 2017 - Global BC
    Parkinson's patients want funding for expensive drug
    [view video]
  • December 29, 2016 - CBC
    Victoria family makes emotional plea for coverage of Parkinson's drug
    [view story]
  • December 23, 2016 - Global BC
    Family battles the government to get Parkinson's drug covered
    [view video]
  • May 12, 2016 - Langley Times 
    Langley woman only Parkinson's patient in B.C. to have special medicine
    [view story]
  • April 12, 2016 - 24 Hours Vancouver 
    BC Asked to fund rare Parkinson's treatment
    [view story]

OTHER RESOURCES:

  • Our Papa, DUODOPA and Parkinson's (December 2016)
    This video features the grandchildren of a person with Parkinson's who is in need of DUODOPA treatment in BC to improve his quality of life
    [watch the video] [Share via Twitter] [Share via Facebook