Participant recruitment is a major challenge in many research studies involving human subjects. Recruitment involves a number of activities, including identifying eligible participants, adequately explaining the study to the potential participants, recruiting an adequate sample based on study goals and design, obtaining informed consent and maintaining ethical standards, and retaining participants until study completion.
The Orchestra Study, a clinical research study to evaluate the use of an investigational medication called UCB0599 in men and women with early-stage Parkinson’s disease, is now enrolling.
There are several criteria to meet if you want to join the Orchestra Study. The most important ones are*:
- Aged 40 - 75 years
- Have been diagnosed with Parkinson’s disease in the past 2 years
- Experience slowness of movement and at least one of the following:
- Muscle stiffness/rigidity
- Have not taken any medications to treat Parkinson’s disease motor symptoms (symptoms related to movement) and are not expected to need any such medications in the next six months.
*There are additional criteria to enroll in the study — the study team will assess these and discuss them with you.
The study is investigating the effect of the study drug on the progression of Parkinson’s disease and associated symptoms over a longer period of time. Therefore, the Orchestra Study can only recruit individuals with mild Parkinson’s disease symptoms.
Learn more about the study, and see if you qualify, at https://orchestra-study.com.
Researchers at the Queensland University of Technology Institute of Heath and Biomedical Innovation are looking to increase knowledge and understanding of how people with Parkinson’s disease (PD) experience the heat, as well as to develop a scale for the assessment of heat sensitivity in people with PD. The outcomes of the research will help to shed light on the experience of heat sensitivity in people with Parkinson’s disease and provide a tool for clinicians and researchers to assess heat sensitivity in people with PD.
- Diagnosed with Parkinson's disease
- Interested in and able to take an online survey, taking approximately 20 minutes of time
If you are interested in participating in this study, please follow this link to the study site: https://survey.qut.edu.au/f/193936/87f4/
For details, please contact:
You will be provided with further information to ensure that your decision and consent to participate is fully informed.
QUT Ethics Approval Number: 2000000718
A double-duty caregiver is a healthcare provider who also provides care outside of work to a family member, chosen family, or friend who is ill, disabled, or frail. Juggling care at work and at home can be very stressful. Dr. Jasneet Parmar, Professor in the Department of Family Medicine at the University of Alberta, wants to understand how the COVID-19 pandemic and double-duty caregiving has impacted Canadian healthcare providers’ caregiving and work experiences.
The researchers think that double-duty caregiving during COVID-19 may have had a significant impact on double-duty caregivers’ health and wellbeing. A small mixed-methods study involving a survey for employers (n=29), and interviews with double-duty caregivers (n=16), found that healthcare providers who work in healthcare and care for an ill, frail, or disabled family member, chosen family, or friend at home without pay:
- are experiencing an increased care load, working greater hours, and have increased fears of safety, resulting in physical and emotional strain;
- and are unable to access support networks and services that supported their care tasks due to COVID-19. Reduced support contributes to double-duty caregivers’ high care load, stress, and burnout (link to Research Brief).
Dr. Parmar and her team are inviting all Canadian healthcare providers who are also family caregivers to complete a survey on the secure REDCap survey platform. It will take about 20 minutes to complete. The link to the survey is www.redcap.link/doubleduty.
Dr. Parmar and her team are using validated scales, such as the Double-Duty Caregiving Scale, DeJong-Gierveld Loneliness Scale, and The Six-Item State Anxiety Scale (a validated short-form of the State-Trait Anxiety Inventory), which will allow them to compare results of this study after two years of the COVID-19 pandemic and pre-pandemic results on the same scales. The study has been approved by the University of Alberta Health Research Ethics Board (Study Number: Pro00117700).
For more information, or if you have questions, please contact Dr. Sharon Anderson at email@example.com or text 780-953-5541.
Researchers at York University are recruiting participants to answer an online questionnaire to evaluate the effects of COVID-19 face masks and facial emotion perception in older adults with and without Parkinson's disease.
- Access to a personal computer Over the age of 65
- Never been diagnosed with a neurodegenerative disease (other than Parkinson's Disease)
- Never been diagnosed with dementia
- Perfect (or lens corrected) vision
Interested in participating? Please fill out an additional screeing survey here.
For questions, contact Geneva Mariotti firstname.lastname@example.org or (647) 878-7961
This study has been designed to evaluate the feasibility of using Magnetic Seizure Therapy (MST) to treat depression in Parkinson's disease. It will study the impact of MST on mood, cognition, suicidal ideation, motor function, quality of life measures, and electroencephalography.
- Between 50-100 years old
- Confirmed diagnosis of Parkinson’s disease
- Moderate-severe depression
- Stable doses of psychotropic medications
- Able to receive convulsive therapy as assessed by a psychiatrist and anesthesiologist
- If on antidepressants, agree to keep them constant during the entire study
- Can adhere to the treatment schedule
- Meet the MST safety criteria
To learn more about this study, view the infographic provided by the coordinators.
Questions about this study can be directed to:
Michelle Avina, email@example.com or 604-822-7308
Do you have Parkinson's disease and experience anxiety? University of British Columbia (UBC) researchers are now recruiting for a clinical trial examining the effects of a multi-strain probiotic on anxiety in Parkinson's disease.
What and who is involved in the study?
- Randomized & blinded clinical trial led by UBC neurologist Dr. Silke Appel-Cresswell
- Two study visits, conducted remotely and in-person at UBC* (~ 6-8 hours/each)
- Visits include clinical assessments, questionnaires, blood samples, and collection of fecal samples at home
- 3 months of taking the probiotic or placebo twice a day
Who can participate in the study?
You may be able to participate if all of the following apply:
- You are between the ages of 40-80
- You have mild to moderate Parkinson's disease
- You experience mild to moderate anxiety
- You do not have other neurological disorders, such as Alzheimer's disease
- You have not had Deep Brain Stimulation (DBS) and are not on Duodopa
- You are not currently receiving psychotherapy
Click here to read the full study record. If you are interested in learning more or participating, please email Petra.Uzelman@ubc.ca or call (604) 827-0576.
* If you reside in Interior British Columbia, you may participate in this clinical trial and attend the two study visits in-person (highway conditions permitting), but otherwise do the study remotely. Remuneration between $30-75, depending on where you are travelling from, will be provided to help cover expenses like gas and/or parking.
Researchers from the University of Auckland are looking for volunteers to participate in their Game-based Exercise Project study, which will explore games as potential systems of rehabilitation. The project aims to develop suitable game-based exercise experiences to help people with Parkinson's and other chronic diseases, while also considering the similarities to age-related symptoms and conditions. Their approach relies on the existing literature on physical activity and exercise rehabilitation while also leveraging the motivational aspects and cognitive contributions of gameplay.
The project has a survey element that aims to collect demographics data to inform the development process. A link to the questionnaire is here: https://forms.gle/M63brY9bgT8EKxwNA
The purpose of this survey is to collect demographics data without any personal information linked to the given answers. You will not be asked to provide your name or any contact details. However, if you would like to be involved in the further stages of the project and/or participate in future user studies, please feel free to get in touch with the researchers.
For more information, please contact Asli Tece Bayrak, firstname.lastname@example.org or call 021 134 4654.
Have you ever played videogames for health-related reasons? Researchers from the University of British Columbia are investigating how to better involve older adults in creating games for rehabilitation that suit their needs. This study will examine adults 50 years or older who have experience using videogames for health, such as for physical, occupational, or cognitive therapy. Participants will take part in online interviews over two hour-long sessions to share their views about using and creating videogames for therapy. Access to a computer, with webcam and internet, is required to participate in this study. An honorarium will be provided for participants’ time.
If you have any further questions, please contact researchers Gordon Tao and Dr. William Miller at email@example.com or 604-734-1313 ext. 6292
Are you looking for new ways of managing Parkinson's disease (PD)? PDCareBox is a collaborative, community-based platform with a collection of techniques to help you live well with PD. PDCareBox helps you find self-care techniques to deal with Parkinson’s in your daily life. The techniques have been contributed by PD patients and their caretakers all over the world.
Inside PDCareBox user can find techniques by using four criteria: sociality, affordability, effectiveness, and community familiarity. You can also see what other participants think the technique is good for. After people test PDCareBox, we will ask you for your opinion of the tool and the techniques via an online questionnaire.
This project is an international research collaboration between University of Oulu, Aalborg University, Fraunhofer University, ULisboa, the University of Melbourne, the University of Pittsburgh, and University of Glasgow.
Visit https://pdcarebox.com/ to learn more and discover over 30,000 unique perspectives.
People with Parkinson's disease (PD) are needed for a study with the Pacific Parkinson's Research Centre that is developing a novel, privacy compliant monitoring tool for people with PD.
The study is specifically looking for participants who:
- Have a confirmed diagnosis of idiopathic PD
- Are capable of providing informed consent
- People with more advanced disease are encouraged to participate (only simple tasks like finger-tapping and walking will be requested)
Regular monitoring of body movement, mood, and other disease symptoms in this population is important to assess disease progression and inform treatment decisions – however, assessments of symptoms are typically only performed once a year due to economic constraints.
The aim of their study is to ultimately develop a smart camera system that preserves your privacy, yet can still measure body movement and mood (without the need for wearable sensors) in a home setting. This information may provide healthcare providers with a more comprehensive insight into a patients disease status.
Please contact Ravneet Mahal at 604-822-7763 or firstname.lastname@example.org if you are interested in participating or would like more information.
Researchers from the University of British Columbia are looking for volunteers to participate in a study to refine the prototype of a website for recruiting paid care workers for people with disabilities and their caregivers.
They are looking for individuals who:
are 19 years of age or older;
have a disability or chronic illness and receive help from a family member OR are a past or current family caregiver
can read, write, and speak English fluently
can attend a scheduled focus group session via Zoom/Skype, or a telephone interview
Depending on your availability, you will attend a focus group OR an individual interview (either will be 90 minutes) via Zoom/Skype/telephone.
You will learn about the prototype of a website for recruiting paid care workers for people with disabilities and their caregivers and asked to discuss its potential benefits as well as share any concerns. You will also help refine the existing prototype by sharing your opinion about its layout and usability. We will also collect some basic information about you, such as age, sex, annual household income, and your caregiver/care recipient background.
Focus group participants will be given a $25 gift card.
Are you a person with Parkinson's disease who experiences hypomimia, otherwise known as masked facies or loss of facial expression? If so, a research study is being conducted exploring the effects of daily exercises on hypomimia. The project is entirely virtual, and consists of an initial assessment of your facial expressions, followed by 6 weeks of daily facial expression exercises to be completed. After 6 weeks, you will repeat the inital assessment tasks to evaluate any improvement.
All personal information will be kept confidential, including names and contact telephone numbers. Once interview data has been transcribed and inputted, it will be destroyed. The only people to view the raw information will be the researcher, their project supervisor, and the examiner. You can withdraw from the study at any time.
For more information, contact Paniz Ghalehvand at P.Ghalehvand8766@student.leedsbeckett.ac.uk.
A collaboration of international researchers is seeking individuals to participate in an online study collecting information about Parkinson's disease self-management strategies. The study is conducted fully online, the participants are asked to fill in a questionnaire, submit their best practices of self-care, and assess the ones submitted by others via pre-set criteria. We do not collect any sensitive personal information. The participants can sign to an email list (hosted on different server), for receiving further information about the proceeding of the project and for joining a raffle of an Amazon gift card.
Take the survey at ab3000.net/campaigns/pd/.
Parkinson’s disease is known to affect parts of the brain that are thought to be involved in perceiving the passage of time, but the nature and degree of any actual time perception problems that result is not well understood. The aim of this research is to determine whether time perception is altered in Parkinson’s disease (PD) and whether this can be accurately quantified. If so, measures of changes in time perception could be potentially used in future as a test that could help diagnose PD and address symptoms.
The research is conducted completely online. There is a very brief questionnaire collecting information including participant age, gender, whether you have PD and what other conditions/medications you may have.
You will then complete a task that consists of two parts. Firstly, you will be shown two images in sequence, one of which appears on screen for slightly longer than the other and asked to say which was there the longest. This is repeated multiple times. Then the same thing is done again, but instead of images, using two audio tones of slightly different duration played in sequence. This whole task should take 20-30 minutes.
The study is being conducted by the NeuroMetrology group in the Nuffield Department of Clinical Neurosciences at the University of Oxford. If you have any questions, contact email@example.com.
Take the survey here.
Have you or someone you know retired from driving or is thinking about retiring from driving? Researchers from the University of British Columbia are conducting a survey to determine the needs of developing a future driving self-management program for individuals with neurological conditions. This survey will take approximately 20 minutes and will help inform researchers about the content and format people with neuroloigcal conditions and their carepartners believe would be beneficial in a driving self-management program.
If you are an individual with a neurological condition or a carepartner, learn more and take the survey here.
If you have any further questions, please contact researchers Ariel Hung and Iris Xie at firstname.lastname@example.org or 778-990-6179.
The Wearable Biomechatronics Laboratory from the University of Western Ontario is looking for volunteers to complete an online survey that explores the current state of Parkinson’s tremor management. In order to participate you must be fluent in English, be receiving treatment(s) for parkinsonian tremor, and be capable of completing an online survey.
If you agree to participate, you would be asked to complete an online survey consisting of multiple sections and short answers. Your participation would involve one online session of no longer than 10 minutes in duration.
Click here for the survey.
For more information about this study, please contact: Devin Box, Faculty of Health Sciences, Western University at email@example.com
Despite the continual growth of people diagnosed with young onset Parkinson’s disease (YOPD), research examining the burdensome non-motor features remains scarce. We hope to identify potential relationships between apathy and other variables that might lead to new and innovative treatments.
To be eligible to participate in this study, participants need to have a clinical diagnosis of YOPD (prior to the age of 50) and be at least 18 years old. Participation in this study will require about 25-minutes of time and will not include any compensation.
Thank you in advance for your consideration. Should you have any questions or concerns, contact Bradley McDaniels, PhD, CRC, Assistant Professor, Department of Rehabilitation and Health Services, University of North Texas, at 469-551-3785 or Bradley.firstname.lastname@example.org.
Click here for the survey.
Volunteers needed for a questionnaire study on service dogs for Parkinson's disease. Individuals may be diagnosed with Parkinson's, Lewy body dementia, or be caregivers of individuals with these diagnoses. Participation is confidential and individual responses will remain anonymous.
Participants do not need to have a service dog to complete the survey.
Service dogs may be of great assistance to those with Parkinson's disease or Lewy body dementia. Thus far, research on this topic has been extremely scarce. However, these highly trained animals may assist in areas including retrieving hard to reach items, finding help for owners in distress, providing balance support, encouraging exercise, and reducing loneliness.
Lisa Skandali, M.Sc. | email@example.com
University of Groningen
To take the survey, click here
The Motor Behavior Lab of Rutgers University is inviting people to participate in a research study evaluating the role of yoga in the lives of individuals with Parkinson's disease or symptoms of anxiety.
Who is eligible for this study?
- Individuals with Parkinson's disease
- Individuals with symptoms of anxiety - such as feelings of nervousness, racing heart, & muscle tension
- Individuals between 18-80 years old (male or female)
- Proficient English speakers
You must not:
- Have an injury or condition that affects your ability to particpate in physical activity
- Have cognitive impairments that could prevent you from communicating or understanding directions
- Be pregnant
What is involved?
You will be asked to participate in four 1.5-hour videoconferencing sessions to answer questionnaires, followed by a 6-week waiting period (no action required). You will then participate in 12 or more yoga sessions in your home via a live video chat with a yoga teacher. The total time commitment is 12 weeks.
To learn more, contact the principal investigator:
Dr. Jean-Francois Daneault, PhD | 973.972.8482 | Email: firstname.lastname@example.org
Researchers from the University of British Columbia are recruiting individuals between ages 50 to 85 who have been recently diagnosed with early stage Parkinson’s disease (less than 5 years duration), as well as healthy individuals between ages 50 to 85 to participate in a study at the Djavad Mowafaghian Centre for Brain Health.
PET/MRI imaging will be used to investigate changes in the brain in Parkinson’s disease, by comparing patterns of altered connections in people with Parkinson’s disease versus healthy controls. If you choose to join, you will be asked to commit up to 14 hours; a single visit of two hours for screening and assessments and two visits of approximately 6 hours each to scan. These visits can be conducted on either consecutive or non-consecutive days.
If you are interested in becoming involved, please contact 604-827-1353 at the Pacific Parkinson’s Research Centre for more information.
The UBC Health Mentors Program is a 9-month volunteer program in which adult mentors and/or caregivers meet 6 times with a small team of UBC students. Health Mentors are experts in their health, and want to share their experiences living with a chronic condition. Students are new healthcare professionals who learn about patient-centred care and how providers can better support people with chronic conditions.
By being a Health Mentor, you will be part of a pioneering program that is contributing to the education of the health professionals of tomorrow. Health Mentors should live in the Metro Vancouver area, and be comfortable talking about their health condition.
For more information, and to apply to be a health mentor, please visit: bit.ly/ubchealthmentors, or refer to this document. Questions can be directed to Program Coordinator, Jen MacDonald, at email@example.com.